Byu smart & connected 2012

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Invited talk to the schools of information science and public health, Brigham Young University December 2012. The ideas presented in the presentation laid the foundation for the subsequent "Smart and Connected Health" NIH-NSF funding initiative.

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Byu smart & connected 2012

  1. 1. SMART AND CONNECTED HEALTH Bradford W. Hesse, PhD Chief, Health Communication and Informatics Research Branch Tuesday, October 29, 2013 Nov 29, 2012
  2. 2. How do we stand up to cancer? Who will make this happen? President’s Cancer Panel Report (2007-2008) Work together across National Cancer Program Tuesday, October 29, 2013
  3. 3. The National Cancer Program Tuesday, October 29, 2013
  4. 4. Question: Is there a mechanism for collective action? How can we connect the “National Cancer Program?” Tuesday, October 29, 2013
  5. 5. Betty White, Saturday Night Live May 8, 2010 Tuesday, October 29, 2013
  6. 6. Founded: February 4, 2004 Registered Users: 955,000,000 Distribution: World wide Reach: 45 % global Internet* Founded: January 15, 2001 Registered Users: 35,000,000 Available in: 285 languages Reach: 14 % global Internet* * Total Global Internet Users (December 31, 2011): 2,267,233,742 Tuesday, October 29, 2013
  7. 7. Founded: September 4, 1998 Revenue: $37.905 billion Distribution: World wide Reach: 48 % global Internet* Founded: February 14, 2005 Entries: 48 hours / minute 8 years / per day Available in: 54 languages Reach: 37 % global Internet* Tuesday, October 29, 2013
  8. 8. TIME Endorses Participative Media as the Accomplishment of year (2005) Tuesday, October 29, 2013
  9. 9. TIME Endorses Participative Media as the Accomplishment of year (2005) Characteris*cs  of  new   Web • Pla$orms  for   Par+cipa+on • Harnessing  “Collec+ve   Intelligence” • Data  as  the  new  “Intel   Inside” Tuesday, October 29, 2013
  10. 10. TIME Endorses Participative Media as the Accomplishment of year (2005) Characteris*cs  of  new   Web • Pla$orms  for   Par+cipa+on • Harnessing  “Collec+ve   Intelligence” • Data  as  the  new  “Intel   Inside” APPLIED TO HEALTH? Tuesday, October 29, 2013
  11. 11. Using the Power of Massive Parallelism: “Citizen Science” • Invested  $50  million  in   Parkinson’s  research • Started  public  blog  on  LRRK2 • Is  leveraging  the  power  of   “big  data”  to  accelerate  the   science • Helped  found,  with  wife   Anne  Wojcicki,  23andMe Tuesday, October 29, 2013
  12. 12. Traditional Model • Hypothesis • Studies • Data aggregation • Analysis • Writing • Submission • Acceptance (NEJM) • Publication Time Elapsed: 6 years Tuesday, October 29, 2013
  13. 13. Genetics Initiative • Tool construction • Recruitment • Analysis • Presentation Time Elapsed: 8 months Tuesday, October 29, 2013
  14. 14. A Fourth Paradigm in Science? A New Era in Health? Tuesday, October 29, 2013
  15. 15. A Fourth Paradigm in Science? A New Era in Health? Tuesday, October 29, 2013
  16. 16. President’s Council of Advisors on Science and Technology (PCAST) Tuesday, October 29, 2013
  17. 17. President’s Council of Advisors on Science and Technology (PCAST) Role of Health I. T. • • • Engage patients in their own care • • • Tuesday, October 29, 2013 Improve quality of care for individual patient Improve population-based knowledge Create infrastructure for clinical studies Develop new tools for medicine Increase administrative efficiency
  18. 18. President’s Council of Advisors on Science and Technology (PCAST) Designing a Digital Future • • NITRD crucial for achieving national / global priorities -- chief among these is Health • Advances in NITRD needed to accelerate discovery in other sciences • Tuesday, October 29, 2013 Networking and Information Technology R & D (NITRD) essential for economic competitiveness NSF and DHHS should work together to fund a new science of Human Computer Interaction with respect to NITRD
  19. 19. Connected People: The National Health Information Infrastructure* * see Hesse BW. Harnessing the power of an intelligent health environment in cancer control. Stud Health Technol Inform. 2005;118:159-176. Tuesday, October 29, 2013
  20. 20. Connected People: Personal, Provider, Population Tuesday, October 29, 2013
  21. 21. Connected People: Personal, Provider, Population How do we promote personal engagement? Source: Hesse BW. Enhancing Consumer Involvement in Health Care. In: Parker JC, Thornson E, eds. Health Communication in the New Media Landscape. New York, NY: Springer Publishing Company; 2008:119-149. Tuesday, October 29, 2013
  22. 22. Connected People: Personal, Provider, Population Health Information National Trends Survey (HINTS) http://hints.cancer.gov/ Source: Hesse, B. W. (2010). Health Communication in a World Gone Flat: Programmatic Overview of HINTS. In L. J. Finney Rutten, B. W. Hesse, R. P. Moser & G. L. Kreps (Eds.), Building the Evidence Base in Cancer Communication. Cresskill, NJ: Hampton Press. Tuesday, October 29, 2013
  23. 23. Connected People: Personal, Provider, Population Tuesday, October 29, 2013
  24. 24. Connected People: Personal, Provider, Population Tuesday, October 29, 2013
  25. 25. Connected People: Personal, Provider, Population 2003* *51.6% looked for self *45.7% looked for others See: Rutten LF, Moser RP, Beckjord EB, Hesse, BW, Croyle RT. Cancer Communication: Health Information National Trends Survey. Washington DC: National Cancer Institute. 2007. Tuesday, October 29, 2013
  26. 26. Connected People: Personal, Provider, Population 2003* 2005* *51.6% looked for self *45.7% looked for others *58.4% looked for self *59.4% looked for See: Rutten LF, Moser RP, Beckjord EB, Hesse, BW, Croyle RT. Cancer Communication: Health Information National Trends Survey. Washington DC: National Cancer Institute. 2007. Tuesday, October 29, 2013
  27. 27. Connected People: Personal, Provider, Population Preferred Source: Imagine you had a strong need to get information about cancer. Where would you go first? See: Rutten LF, Moser RP, Beckjord EB, Hesse, BW, Croyle RT. Cancer Communication: Health Information National Trends Survey. Washington DC: National Cancer Institute. 2007. Tuesday, October 29, 2013
  28. 28. Connected People: Personal, Provider, Population Actual Source: The most recent time you wanted information on cancer, where did you go first? See: Rutten LF, Moser RP, Beckjord EB, Hesse, BW, Croyle RT. Cancer Communication: Health Information National Trends Survey. Washington DC: National Cancer Institute. 2007. Tuesday, October 29, 2013
  29. 29. Connected People: Personal, Provider, Population Source:Hesse BW, Moser RP, Rutten LJ. Surveys of physicians and electronic health information. N Engl J Med. Mar 4 2010;362(9):859-860. Tuesday, October 29, 2013
  30. 30. Connected People: Personal, Provider, Population Source:Hesse BW, Moser RP, Rutten LJ. Surveys of physicians and electronic health information. N Engl J Med. Mar 4 2010;362(9):859-860. Tuesday, October 29, 2013
  31. 31. Connected People: Personal, Provider, Population Source:Hesse BW, Moser RP, Rutten LJ. Surveys of physicians and electronic health information. N Engl J Med. Mar 4 2010;362(9):859-860. Tuesday, October 29, 2013
  32. 32. Connected People: Personal, Provider, Population Source:Hesse BW, Moser RP, Rutten LJ. Surveys of physicians and electronic health information. N Engl J Med. Mar 4 2010;362(9):859-860. Tuesday, October 29, 2013
  33. 33. Connected People: Personal, Provider, Population 2008* Online Support Bloggers Social Networking 80% % Internet Users 70% 60% 50% 40% 30% 20% 10% 0% 18-24 25-34 35-44 45-54 55-64 65+ Age Source: Chou WY, Hunt YM, Beckjord EB, Moser RP, Hesse BW. Social media use in the United States: implications for health communication. J Med Internet Res. 2009;11(4):e48. Tuesday, October 29, 2013
  34. 34. Connected People: Personal, Provider, Population 2008* Online Support Bloggers Social Networking 80% % Internet Users 70% 60% 50% 40% 30% 20% 10% 0% 18-24 25-34 35-44 45-54 55-64 65+ Age Source: Chou WY, Hunt YM, Beckjord EB, Moser RP, Hesse BW. Social media use in the United States: implications for health communication. J Med Internet Res. 2009;11(4):e48. Tuesday, October 29, 2013
  35. 35. Connected People: Personal, Provider, Population Health Information National Trends Survey (HINTS) http://hints.cancer.gov/ Source: Hesse, B. W. (2010). Health Communication in a World Gone Flat: Programmatic Overview of HINTS. In L. J. Finney Rutten, B. W. Hesse, R. P. Moser & G. L. Kreps (Eds.), Building the Evidence Base in Cancer Communication. Cresskill, NJ: Hampton Press. Tuesday, October 29, 2013
  36. 36. Connected People: Personal, Provider, Population Health Information National Trends Survey (HINTS) http://hints.cancer.gov/ Source: Hesse, B. W. (2010). Health Communication in a World Gone Flat: Programmatic Overview of HINTS. In L. J. Finney Rutten, B. W. Hesse, R. P. Moser & G. L. Kreps (Eds.), Building the Evidence Base in Cancer Communication. Cresskill, NJ: Hampton Press. Tuesday, October 29, 2013
  37. 37. Connected People: Personal, Provider, Population Self-Determination Theory Autonomy Mastery Connectedness Source: Hesse BW. Enhancing Consumer Involvement in Health Care. In: Parker JC, Thornson E, eds. Health Communication in the New Media Landscape. New York, NY: Springer Publishing Company; 2008:119-149. Tuesday, October 29, 2013
  38. 38. Connected People: Personal, Provider, Population Self-Determination Theory Autonomy Mastery Connectedness Wired Magazine; “The Nike Experiment: How the Shoe Giant Unleashed the Power of Personal Metrics” Source: Hesse BW. Enhancing Consumer Involvement in Health Care. In: Parker JC, Thornson E, eds. Health Communication in the New Media Landscape. New York, NY: Springer Publishing Company; 2008:119-149. Tuesday, October 29, 2013
  39. 39. Connected People: Personal, Provider, Population Self-Determination Theory Autonomy Mastery Connectedness Caring Bridge Creates Communities of Support Source: Hesse BW. Enhancing Consumer Involvement in Health Care. In: Parker JC, Thornson E, eds. Health Communication in the New Media Landscape. New York, NY: Springer Publishing Company; 2008:119-149. Tuesday, October 29, 2013
  40. 40. Connected People: Personal, Provider, Population Tuesday, October 29, 2013
  41. 41. Connected People: Personal, Provider, Population Tuesday, October 29, 2013
  42. 42. Connected People: Personal, Provider, Population Tuesday, October 29, 2013
  43. 43. Connected People: Personal, Provider, Population Benefits • “Many  eyes”  on  record  to   improve  quality • Memory  cue  for  pa+ent  aQer   exam • Personal  right  of  pa+ent Tensions • Is  some  informa+on  “Toxic?” • Will  doctors  be  unnecessarily   restricted  in  what  they  write? Clinical Trial currently underway in Boston, MA Tuesday, October 29, 2013
  44. 44. Connected People: Personal, Provider, Population Benefits • “Many  eyes”  on  record  to   improve  quality • Memory  cue  for  pa+ent  aQer   exam • Personal  right  of  pa+ent Tensions • Is  some  informa+on  “Toxic?” • Will  doctors  be  unnecessarily   restricted  in  what  they  write? Health Record as “Wiki” Tuesday, October 29, 2013
  45. 45. Connected People: Personal, Provider, Population Source: www.HealthIT.gov Tuesday, October 29, 2013
  46. 46. Connected People: Personal, Provider, Population Comprehensive Health Enhancement Support System (CHESS) Clinician Report Tuesday, October 29, 2013
  47. 47. Connected People: Personal, Provider, Population * Hesse BW. Public Health Informatics. In: Gibbons MC, editor. eHealth Solutions for Healthcare Disparities. New York, NY: Springer; 2007. p. 109-129. Tuesday, October 29, 2013
  48. 48. Connected People: Personal, Provider, Population Intel: “Aging in Place” ARRA Grant: U MD * Hesse BW, Suls JM. Informatics-enabled behavioral medicine in oncology. Cancer J. Jul-Aug 2011;17 (4):222-230. Tuesday, October 29, 2013
  49. 49. Connected People: Personal, Provider, Population Intel: “Aging in Place” ARRA Grant: U MD * Hesse BW, Suls JM. Informatics-enabled behavioral medicine in oncology. Cancer J. Jul-Aug 2011;17 (4):222-230. Tuesday, October 29, 2013
  50. 50. Connected People: Personal, Provider, Population Access to Personal Data a Civil Right? Tuesday, October 29, 2013
  51. 51. Connected People: Personal, Provider, Population Access to Personal Data a Civil Right? Tuesday, October 29, 2013
  52. 52. Connected People: Personal, Provider, Population Access to Personal Data a Civil Right? Tuesday, October 29, 2013
  53. 53. Connected People: Personal, Provider, Population Access to Personal Data a Civil Right? Tuesday, October 29, 2013
  54. 54. Connected People: Personal, Provider, Population Tuesday, October 29, 2013
  55. 55. Connected People: Personal, Provider, Population Behavioral Data Data “Mash Ups” Mortality Data Source: Rutten LF, Hesse BW, Moser RP, Kreps GL, eds. Building the Evidence Base in Cancer Communication. Cresskill, NJ: Hampton Press; 2010. Kreps GL, ed. Health Communication. Tuesday, October 29, 2013
  56. 56. Connected People: Personal, Provider, Population Behavioral Data Data “Mash Ups” Mortality Data Source: Rutten LF, Hesse BW, Moser RP, Kreps GL, eds. Building the Evidence Base in Cancer Communication. Cresskill, NJ: Hampton Press; 2010. Kreps GL, ed. Health Communication. Tuesday, October 29, 2013
  57. 57. Connected People: Personal, Provider, Population Behavioral Data Data “Mash Ups” Mortality Data Source: Rutten LF, Hesse BW, Moser RP, Kreps GL, eds. Building the Evidence Base in Cancer Communication. Cresskill, NJ: Hampton Press; 2010. Kreps GL, ed. Health Communication. Tuesday, October 29, 2013
  58. 58. Connected People: Personal, Provider, Population Source: Forman MR, Greene SM, Avis NE, et al. Bioinformatics: Tools to accelerate population science and disease control research. Am J Prev Med. Jun 2010;38(6):646-651. Tuesday, October 29, 2013
  59. 59. Connected People: Personal, Provider, Population Opening Data to Innovators Tuesday, October 29, 2013
  60. 60. Connected People: Personal, Provider, Population Opening Data to Innovators Tuesday, October 29, 2013
  61. 61. Connected People: Personal, Provider, Population Tuesday, October 29, 2013
  62. 62. Smart and Connected Health Source: Hesse, B. W., Hansen, D., Finholt, T., Munson, S., Kellogg, W., & Thomas, J. C. (2010). Social Participation in Health 2.0. IEEE Computer, 43(11), 45-52. Tuesday, October 29, 2013
  63. 63. Thank you! Tuesday, October 29, 2013

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