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‘Talking across the divide’
Building multi-professional understanding for work
with parents with learning difficulties where there are
concerns about child neglect
Danielle Turney & Beth Tarleton
University of Bristol
9th
BASPCAN Congress
12th
-15th
April 2015, Edinburgh
1 July 2015
1
Outline
• Why is parenting by people with learning
difficulties an issue?
• Professional challenges in developing
positive practice
• Using ‘conversations with a purpose’:
exploring personal, professional and
parenting perspectives
• Supporting effective multi-professional
working
Parents with learning difficulties
• Increase in number of people with LDs
who are becoming parents
• 12.5% of care proceeding cases
involve parent with LD (Masson et al.,
2008)
• Concerns re neglect by omission
• Large number of professionals
involved
How things are now
Parents with LD
Children’s
Services
Adult
services
Social attitudes &
stereotypes of people with LDs
Policy/service context
Paramountcy
principle &
children’s needs
Paramountcy
principle &
children’s needs
Parents’ right to
parent
Parents’ right to
parent
Key issues for parents
• Stigma, social exclusion, stereotypes
and suspicion
• Professionals’ presumption of lack of
capacity
• Parents’ fear of engagement with C&F
social work
• Lack of formal & informal support
networks and accessible information
Practice issues
• Historically limited communication
between children’s and adults’ services &
sometimes antagonistic relationships
• Advocacy services may promote (adults’)
rights-based arguments rather than
discussing children’s needs.
Challenges for Children’s Services
• Paramountcy of child’s interests
• Eligibility criteria & threshold decisions
• Family support and/or child protection
• Short-termism vs long-term and/or
recurring support needs
• Lack of knowledge/training to work with
parents with LD
Challenges for Adult Services
• Strict eligibility criteria - moderate LD
• Another group to meet needs…..
• Lack of focus on parenting
• Perceived emphasis on ‘adults’ rights’
• Engagement where children removed
‘unnecessarily’  championing positive
practice
Parents’ access to support
Early intervention Family support Child protection
Desired
entry
point
Actual
entry
point
entry point
Where we need to get to …
Non-stigmatising views of parents with LDs
Support for vulnerable families as part of society
‘Conversations with a purpose’
• ‘Conversations with a purpose’
• Using ourselves as a ‘test case’ to try
and reach understanding of different
perspectives
• Structured and purposive discussions
• Further on-going & informal discussion
between DT and BT
‘Conversation with a purpose’ (2)
• Reflective and critically reflexive
• Drawing on personal, professional and
parenting experience/beliefs/values
• Development through dialogue of areas of
common understanding
• Understanding individual positions as
situated within broader professional
challenges and debates
Ground rules
• Being honest while managing own level of disclosure
(particularly in relation to own history)
• Respecting each other’s contributions
• Recognising that these conversations may be difficult
for us individually but committing to the process
• Using as a learning experience - potentially
transferable to external context
• Acknowledging that we won't all agree all the time
and recording/ accepting differences of opinion or
approach.
• We do not have to ‘toe the professional party line’
• ‘What’s said in the room stays in the room’
Questions we asked ourselves
• What assumptions – personal, professional,
societal – do we hold about what it means to
be a parent and the boundaries around this
role?
• How can structures and approaches to
service delivery be organised to meet
parents’ and children’s changing support
needs in a context of diminishing resource?
Talking across the divide
A number of factors necessary to support
discussion:
• Time
• Trust
• Truthfulness
Challenges
• A learning difficulty/disability is for life
so how long can/should a family be
supported?
• How much do you have to be able to
do yourself to be a parent?
• Current professional realities v ideal
world
Challenges of providing effective
services
• Mainstream and/or specialist?
• Building effective multi-agency and multi-
professional responses
• Timescale for professional involvement
• Emphasis on early intervention is positive but work may
need to be long-term or recurrent
• Response that meets changing developmental needs of
child AND changing support needs of parent(s)
Professional working ‘across the
divide’
Time
Trust
Truthfulness
Transparency
Tailored response
Examples of positive practice
• Wtpn.co.uk
• Healthy Start
• Birmingham hub
• Valuing People Support Service
Changing our thinking?
• Political commitment to addressing long-term and
‘returning’ support needs of parents with learning
disabilities
• Organisational structures and approaches to
service delivery to meet parents’ & children’s
changing needs
• Exploring underpinning assumptions about what is
means to (be a) parent, and who can/should take
on this role

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'Talking across the divide' Building multi-professional understanding for work with parents with learning difficulties where there are concerns about child neglect

  • 1. ‘Talking across the divide’ Building multi-professional understanding for work with parents with learning difficulties where there are concerns about child neglect Danielle Turney & Beth Tarleton University of Bristol 9th BASPCAN Congress 12th -15th April 2015, Edinburgh 1 July 2015 1
  • 2. Outline • Why is parenting by people with learning difficulties an issue? • Professional challenges in developing positive practice • Using ‘conversations with a purpose’: exploring personal, professional and parenting perspectives • Supporting effective multi-professional working
  • 3. Parents with learning difficulties • Increase in number of people with LDs who are becoming parents • 12.5% of care proceeding cases involve parent with LD (Masson et al., 2008) • Concerns re neglect by omission • Large number of professionals involved
  • 4. How things are now Parents with LD Children’s Services Adult services Social attitudes & stereotypes of people with LDs Policy/service context Paramountcy principle & children’s needs Paramountcy principle & children’s needs Parents’ right to parent Parents’ right to parent
  • 5. Key issues for parents • Stigma, social exclusion, stereotypes and suspicion • Professionals’ presumption of lack of capacity • Parents’ fear of engagement with C&F social work • Lack of formal & informal support networks and accessible information
  • 6. Practice issues • Historically limited communication between children’s and adults’ services & sometimes antagonistic relationships • Advocacy services may promote (adults’) rights-based arguments rather than discussing children’s needs.
  • 7. Challenges for Children’s Services • Paramountcy of child’s interests • Eligibility criteria & threshold decisions • Family support and/or child protection • Short-termism vs long-term and/or recurring support needs • Lack of knowledge/training to work with parents with LD
  • 8. Challenges for Adult Services • Strict eligibility criteria - moderate LD • Another group to meet needs….. • Lack of focus on parenting • Perceived emphasis on ‘adults’ rights’ • Engagement where children removed ‘unnecessarily’  championing positive practice
  • 9. Parents’ access to support Early intervention Family support Child protection Desired entry point Actual entry point entry point
  • 10. Where we need to get to … Non-stigmatising views of parents with LDs Support for vulnerable families as part of society
  • 11. ‘Conversations with a purpose’ • ‘Conversations with a purpose’ • Using ourselves as a ‘test case’ to try and reach understanding of different perspectives • Structured and purposive discussions • Further on-going & informal discussion between DT and BT
  • 12. ‘Conversation with a purpose’ (2) • Reflective and critically reflexive • Drawing on personal, professional and parenting experience/beliefs/values • Development through dialogue of areas of common understanding • Understanding individual positions as situated within broader professional challenges and debates
  • 13. Ground rules • Being honest while managing own level of disclosure (particularly in relation to own history) • Respecting each other’s contributions • Recognising that these conversations may be difficult for us individually but committing to the process • Using as a learning experience - potentially transferable to external context • Acknowledging that we won't all agree all the time and recording/ accepting differences of opinion or approach. • We do not have to ‘toe the professional party line’ • ‘What’s said in the room stays in the room’
  • 14. Questions we asked ourselves • What assumptions – personal, professional, societal – do we hold about what it means to be a parent and the boundaries around this role? • How can structures and approaches to service delivery be organised to meet parents’ and children’s changing support needs in a context of diminishing resource?
  • 15. Talking across the divide A number of factors necessary to support discussion: • Time • Trust • Truthfulness
  • 16. Challenges • A learning difficulty/disability is for life so how long can/should a family be supported? • How much do you have to be able to do yourself to be a parent? • Current professional realities v ideal world
  • 17. Challenges of providing effective services • Mainstream and/or specialist? • Building effective multi-agency and multi- professional responses • Timescale for professional involvement • Emphasis on early intervention is positive but work may need to be long-term or recurrent • Response that meets changing developmental needs of child AND changing support needs of parent(s)
  • 18. Professional working ‘across the divide’ Time Trust Truthfulness Transparency Tailored response
  • 19. Examples of positive practice • Wtpn.co.uk • Healthy Start • Birmingham hub • Valuing People Support Service
  • 20. Changing our thinking? • Political commitment to addressing long-term and ‘returning’ support needs of parents with learning disabilities • Organisational structures and approaches to service delivery to meet parents’ & children’s changing needs • Exploring underpinning assumptions about what is means to (be a) parent, and who can/should take on this role