Dual perspectives on Down syndrome

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A discussion of Down syndrome from the perspective of both a sibling and a parent

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Dual perspectives on Down syndrome

  1. 1. Confessions of the Chromosomally EnhancedDual perspectives on Down syndrome Sibling & Parent Elizabeth Newtonwww.ConfessionsOfTheChromosomallyEnhanced.Blogspot.com
  2. 2. My Big Sister
  3. 3. Building a healthy sibling relationship• Down syndrome was not a secret, but it was not an issue• Each sibling established her own identity• High expectations without exceptions• My sibling was never made to be my responsibility
  4. 4. Special Needs Sibling Benefits -Kaiser Permanente Department of Genetics
  5. 5. AdoptionAccording to the National Down Syndrome AdoptionNetwork, there are more than 200 families waitingto adopt a baby with Down syndrome. Some chooseto adopt a child because they have a sibling or otherrelative with Down syndrome. Many who work inthe special education or therapy field are interestedin adopting children with Down syndrome as well.
  6. 6. Health Issues
  7. 7. Early Intervention Josie’s Early Intervention resources include:• Mississippi Bend Area • University of Iowa Children’s Education Association Hospital Center for Disabilities and Development• Genesis Pediatric Therapy • GiGi’s Playhouse
  8. 8. Advice for therapists • Approach each child as an individual • Set high expectations and push • Be flexible • Highlight the positive • Use current terminology and people-first language
  9. 9. The Down Syndrome Experience: A SurveyThree related surveys led by a physician at Children’s Hospital Boston suggest that the experience of Down syndrome is a positive one for most parents, siblings and people with Down syndrome themselves. The results, published in three reports in the October issue of the American Journal of Medical Genetics, may serve to inform expectant parents and clinicians providing prenatal care.
  10. 10. Siblings
  11. 11. Individuals with Down syndrome

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