Your SlideShare is downloading. ×
Social Media-Rare Disease (Luis Luque, Manuel Armayones)
Upcoming SlideShare
Loading in...5
×

Thanks for flagging this SlideShare!

Oops! An error has occurred.

×

Saving this for later?

Get the SlideShare app to save on your phone or tablet. Read anywhere, anytime - even offline.

Text the download link to your phone

Standard text messaging rates apply

Social Media-Rare Disease (Luis Luque, Manuel Armayones)

821
views

Published on

second part IN3-UOC Social Media and Rare Diseases: an opportunity for the long tail. …

second part IN3-UOC Social Media and Rare Diseases: an opportunity for the long tail.
Luis Luque & Manuel Armayones.


0 Comments
0 Likes
Statistics
Notes
  • Be the first to comment

  • Be the first to like this

No Downloads
Views
Total Views
821
On Slideshare
0
From Embeds
0
Number of Embeds
1
Actions
Shares
0
Downloads
1
Comments
0
Likes
0
Embeds 0
No embeds

Report content
Flagged as inappropriate Flag as inappropriate
Flag as inappropriate

Select your reason for flagging this presentation as inappropriate.

Cancel
No notes for slide

Transcript

  • 1. How can things change? By implementing a comprehensive approach to rare diseases By developing appropriate public health policies By increasing international cooperation in scientific research By gaining and sharing scientific knowledge about all rare diseases, not only the most “frequent” ones By developing new diagnostic and therapeutic procedures By raising public awareness By facilitating the network of patient groups to share their experience and best practices By supporting the most isolated patients and their parents to create new patient communities or patient groups By providing comprehensive quality information to the rare disease community Source: Eurordis
  • 2. By implementing a comprehensive approach to rare diseases
  • 3.  
  • 4. By developing appropriate public health policies
  • 5.  
  • 6.  
  • 7. By gaining and sharing scientific knowledge about all rare diseases, not only the most “frequent” ones By developing new diagnostic and therapeutic procedures
  • 8.  
  • 9. By gaining and sharing scientific knowledge about all rare diseases, not only the most “frequent” ones By developing new diagnostic and therapeutic procedures
  • 10. By raising public awareness By facilitating the network of patient groups to share their experience and best practices
  • 11. By supporting the most isolated patients and their parents to create new patient communities or patient groups
  • 12. Thanks for your atention Thanks! More Questions???