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Looking forward the “classical” e-patient: approach to a typology …

Looking forward the “classical” e-patient: approach to a typology
Can we combine information from eHealth Literacy Scale with Patient Activation Measure to offer a tailored intervention?

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  • 1. Looking forward the “classical” e-patient: approach to a typology PSINET Research Group Open University of Catalonia. [email_address] @armayones III Workshop on Technology for HealthCare and Healthy Life Polytechnic University of Valencia
  • 2. Challenges in Health Social Networks
    • We need to know more about “Law of attrition” here is the observation that in any eHealth trial/tool a substantial proportion of users drop out before completion or stop using the application. (Eynsebach;2005)
    • “ Our user (APTIC) shows a high level of self-efficacy, perceived social supports in the PRE analysis” …Can we improve more the “key variables”? What about the rest of patients?
    • Our (unrealistic) vision: “If I create a “wonderful” Social Network , people will come”.
    • Not taking in account the role of Facilitator/ Community manager? … Are you specialist in human behavior? ….Captology.
  • 3.
    • Why the people “hate” my Social Network?
    • Why they don’t are “active users” with a high level of participation?
    • Why they don’t come? It’s “Free” and “Wonderful tool for the patients”
    • Why we are working for only a part o population?
    • At list……
    Do you have questions like?...
  • 4. Where are the ePatients?
  • 5. We need to know more about ePatients:
        • Evaluating all their characteristics:
        • Educational level
        • Age
        • Attitudes
        • Informatics skills
        • Informational skills
        • Reading level
        • Writing skills
        • Social skills
        • Expectative about health/disease
        • Interest in collaborate in research
  • 6. Our approach
    • Survey/Focus Group/In-deep interviews about demographic and social information
    • Use of two specific Scales (or create one)
    • -eHeals Scale: eHealth Literacy Scale
    • -Patient Activation Measure Scale.
  • 7.  
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  • 10. eHealth Literacy Scale
    • I know what health resources are accessible through the Internet.
    • I know where to find useful health resources on the Internet.
    • I know how to find useful health resources on the Internet.
    • I know how to use the Internet to find answers to health issues.
    • I know how to use the information you find on the Internet about health for me to be helpful.
    • I have the skills to assess health resources found on the Internet.
    • I can distinguish in Internet health resources of good quality of poor quality
    • I feel safe when using Internet information in making health decisions.
  • 11. Patient Activation Measure (PAM)
    • When all is said and done, I am the person who is responsible for managing my health condition.
    • I am confident that I can take actions that will help prevent or minimize some symptoms or problems associated with my health condition.
    • I know what each of my medications do.
    • I am confident that I can tell when I need to go get medical care and when I can handle a health problem myself.
  • 12.
    • I know the different medical treatment options available for my health condition.
    • I have been able to maintain the lifestyle changes for my health that I have made.
    • I know how to prevent further problems with my health conditions.
    • I am confident I can figure out solutions when new situations or problems arise with my health.
    • I am confident that I can maintain lifestyle changes like diet and exercise even during times of stress.
  • 13. But, if…we combine both..?
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  • 23. At the end…The Personalized intervention with ePatients can be a good strategy to improve our knowledge about
    • Personalized Medicine:
        • Right Drug, Right Patient, Right Moment
    • Personalized ePatient Intervention
      • Right Social Media Tool, Right Person, Right Moment
  • 24.
    • Thanks for your attention!
    • [email_address]
    • @armayones