In order to do this presentation, you will need to be trained so that you can be very informed and familiar with accurate information so that you can be prepared to answer questions and discuss issues accurately.
Therefore, all presenters must know the information and be able to explain and discuss all the facts and information that are in the Educator’s In-Service Program on Tourette Syndrome pages 4-7 and pages 14 and 15.
In addition, presenters should be familiar with pages 25-27 of the Participant’s Guide.
Because I can’t control it-I have Tourette Syndrome-a medical condition. It causes me to make loud sounds, have twitches, and say things I don’t mean. I can’t help it anymore than you can stop a sneeze or a cough. I am sorry if it bothers you—it bothers me more.”
(You will not display this right now; you will bring it out at the end when the presentation calls for it!)
Inform the group that you are from an organization called the Tourette Syndrome Association and you are here to talk about Tourette Syndrome.
Next, ask the children if anyone has ever heard of TS. If children have heard about it let them explain what they know.
Be prepared to hear answers that are not factual, especially things they have seen or heard in the media. If answers should come up like these explain that that is how Tourette is shown in the media, but they are going to soon find out how different Tourette really is.
Remember to give positive reinforcement, even if an answer is wrong. You want to make the kids feel confident in contributing to the conversation.
Some tics are not very noticeable at all. But, these tics can often cause your body to hurt. Imagine if a muscle in your arm was tightening all day, all the time. Explain how this would cause your muscle to feel sore.
Tics can also interfere with things that you might want to do. If you are constantly moving your head, or blinking your eyes, it would make it very hard to do simple things like read, watch TV, or copy something from a blackboard.
**For students in Kindergarten, 1st and 2nd grades this activity should be modified. Do not distribute the Pledge--- Simply have the children try to write their names while blinking their eyes and nodding their heads “yes”.
Now, remind them once again how a tic is an involuntary, sudden, rapid, recurrent movement that is either motor or vocal.
In order to have TS you must demonstrate one of each and that they only had a motor tic for this exercise, while most people with TS have multiple motor and verbal tics along with the tics of the mind.
“ WHY DO I ACT THIS WAY? Because I can’t control it- I have Tourette Syndrome- a medical condition. It causes me to make loud sounds, have twitches, and say things I don’t mean. I can’t help it anymore then you can stop a sneeze or a cough. I’m sorry if it bothers you—it bothers me more.”
You should not rely on the information in these materials as a substitute for consultations with qualified health care professionals who are familiar with individual medical conditions and needs. TSA strongly recommends that care and treatment decisions related to Tourette Syndrome and any other medical condition be made in consultation with a patient's physician or other qualified health care professionals who are familiar with the specific individual's health situation.