The Esrd Network And A Patients Perspective On A Disaster

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  • The Esrd Network And A Patients Perspective On A Disaster

    1. 1. The ESRD Network and a Patient’s Perspective on a Disaster Kidney & Urology Foundation of America NY Hall of Science Queens, NY June 19, 2007
    2. 2. Objectives: <ul><li>Brief overview of ESRD Network Program </li></ul><ul><li>Discuss the purpose, development and progress of the ESRD Network Coalition for Disaster Preparedness </li></ul><ul><li>Discuss the importance of disaster planning from a patient perspective </li></ul>
    3. 3. The History <ul><li>The End Stage Renal Disease Network program is a national health insurance program for people with irreversible kidney disease and was established in 1972 </li></ul><ul><li>In 1978 congress authorized development of network organizations and thirty-two networks were established </li></ul><ul><li>In 1988 CMS awarded 18 contracts to administer the program </li></ul><ul><li>IPRO awarded contract July 2006 </li></ul>
    4. 4. “ The Mission of the End Stage Renal Disease Network of New York is to promote Health Care for all ESRD patients that is safe, effective, efficient, patient- centered, timely and equitable. ”
    5. 5. Who We Are … <ul><li>General NY state population of 19,254,630 </li></ul><ul><li>There are currently 23,000 ESRD patients receiving dialysis treatment in NY </li></ul><ul><li>254 facilities in NY </li></ul>
    6. 6. How Does the Network Work? <ul><li>Each network is responsible for conducting activities in the following areas : </li></ul><ul><ul><li>Task 1 quality improvement </li></ul></ul><ul><ul><li>Task 2 community information and resources </li></ul></ul><ul><ul><li>Task 3 administration </li></ul></ul><ul><ul><li>Task 4 information management  </li></ul></ul>
    7. 7. Community Information and Resources <ul><li>Establish a Coalition </li></ul><ul><li>Complaints and Grievances </li></ul><ul><li>Educational material to patients </li></ul><ul><li>Emergency Preparedness </li></ul>
    8. 8. Emergency Preparedness <ul><li>Required to facilitate and assist providers in developing plans for emergencies </li></ul><ul><li>In the event of disasters the NW will track availability of services and assist patients in identifying facilities that can provide ESRD treatment </li></ul><ul><li>Educational material to patients </li></ul><ul><li>Development of an internal plan </li></ul>
    9. 9. ESRD Network Coalition for Disaster Preparedness <ul><li>Purpose: </li></ul><ul><li>To collaborate on ensuring safe and efficient care during an emergency </li></ul><ul><li>To locally operationalize the work that was done within the national disaster coalition </li></ul>
    10. 10. FACTS More than half of the New York State ESRD population is within the five boroughs
    11. 11. There are 11,491 ESRD patients receiving treatment within the 5 boroughs There are 122 dialysis facilities in the 5 boroughs FACTS
    12. 12. Kickoff Meeting <ul><li>Invited 70 leaders within the renal community </li></ul><ul><li>Coalition building lecture </li></ul><ul><li>Collaborated on the need for an operational plan within the 5 boroughs </li></ul><ul><li>Identified 3 areas that need focus </li></ul>
    13. 13. Subgroups <ul><li>Education </li></ul><ul><li>Surge Capacity and Communication </li></ul><ul><li>Transportation and Communication </li></ul><ul><li>Resource Management, Regulatory Barriers and Database Management </li></ul>
    14. 14. Education Focus: Education on all aspects of emergency preparedness for dialysis patients and staff
    15. 15. Surge Capacity and Communication <ul><li>Focus: Develop a communication algorithm for all phases of disaster preparedness </li></ul>
    16. 16. Transportation and Communication <ul><li>Focus: Identify needs of how patients will be transported to and from dialysis in the event of a city-wide disaster </li></ul>
    17. 17. Resource Management, Regulatory Barriers and Database Management <ul><li>Focus: Establish Network contact with OEM and DOH, make assessment of ESRD cache, Develop system-wide database, ensure inter-facility plans, Mutual aid agreements </li></ul>
    18. 18. Steering Committee <ul><li>Consists of all group leaders </li></ul><ul><li>ESRD Network Community Outreach Coordinator </li></ul><ul><li>ESRD Network Executive Director </li></ul><ul><ul><li>Conference calls </li></ul></ul><ul><ul><li>Brainstorm on direction of coalition and subgroups </li></ul></ul>
    19. 19. Accomplishments
    20. 20. Education <ul><li>Members developed letter and sent to facility Medical Directors and Administrators on Coalition efforts asking them to engage in staff and patient education </li></ul><ul><li>Similar letter developed for other disciplines to add to the education effort </li></ul><ul><li>Brainstorming on an educational toolkit to be sent to each facility to use for education of staff and patients </li></ul><ul><li>Developing a personalized Patient Emergency Data Sheet </li></ul>
    21. 21. Surge Capacity and Communication <ul><li>Developed questions for a questionnaire to be sent to facilities with the following guidelines: </li></ul><ul><ul><li>Advanced Preparedness </li></ul></ul><ul><ul><li>Notified Preparedness </li></ul></ul><ul><ul><li>During Emergency </li></ul></ul><ul><ul><li>Post Emergency (Recovery) </li></ul></ul>
    22. 22. Transportation and Communication <ul><li>Identified the main source of transportation of dialysis patients </li></ul><ul><li>Recruited a member of the newly formed New York Ambulette Coalition </li></ul>
    23. 23. Resource Management, Regulatory Barriers and Database Management <ul><li>Critical Asset Survey Tool </li></ul><ul><li>Medical Reserve Corps contacts </li></ul><ul><li>Initiated Vendor Contacts </li></ul><ul><li>Initiated Resource Identification/Grant Money </li></ul><ul><li>Patient “To Go Bags” </li></ul><ul><li>Identify different levels of disaster </li></ul><ul><li>i.e. Level I, II, III </li></ul><ul><ul><li>Facility </li></ul></ul><ul><ul><li>Borough </li></ul></ul><ul><ul><li>City </li></ul></ul>
    24. 24. Next Steps <ul><li>Continue efforts to create awareness and solicit assistance from other groups </li></ul><ul><li>Meet with all groups in September at IPRO headquarters to continue development of disaster preparedness plan </li></ul>
    25. 25. Patient Perspective How important is it to plan ahead?
    26. 26. There are many feelings involved with being dependent on life sustaining treatment <ul><li>Not being in control of own life </li></ul><ul><li>Fear of getting worse </li></ul><ul><li>Death </li></ul>
    27. 27. One of the greatest fears may be not being able to receive the treatment needed
    28. 28. Patients depend on professionals To provide direction To give support To be prepared To take care of them
    29. 29. Teamwork, Collaboration and Cooperation is key
    30. 30. Thank You

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