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Plenary Challenge Lutkenoff

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  • Kudos to the Adult day on Sunday with preparing a program that centered around living healthy and information about this guide. All conference attendees are getting a complimentary copy on CD in your conference bag Binders are available for sale at the SBA booth for 14.99 and 4.99 for
  • Transcript

    • 1. Health Guide for Adults Living with Spina Bifida
    • 2.
      • Feeling Great
      • Looking Good
      • Living Healthy with Spina Bifida
      • Managing My Own Health Appendix A – Personal Health Record
      • Appendix B – Background on Spina Bifida
      Health Guide for Adults Living with Spina Bifida
    • 3.
      • Health Guide for Adults Living with Spina Bifida
      • Practical resource for adults to use in managing their own health care
      • Focus on health information
      • First in a series of health guides for the spina bifida community
        • guide for parents to follow in 2006
        • guide for teens to follow in 2007
    • 4.
      • Practical Thoughts on How to Use This Guide
      TIPS FOR USING HEALTH GUIDE
    • 5. Adult Learning Principles
        • Adults are practical and goal-oriented
        • Adults learn best when in a supportive environment
    • 6. Hurdles
      • Overwhelming-Break big goals down into smaller goals that are more realistic and attainable
      • Disorganization- Work together
      • Fear of failure-Celebrate efforts as well as success
    • 7.
      • 1. Feeling Great
          • Mental health
          • Learning
          • Social Skills
          • Sexuality
      Health Guide for Adults Living with Spina Bifida
    • 8.
      • 1. Feeling Great
          • Mental health
          • Learning
          • Social Skills
          • Sexuality
      Health Guide for Adults Living with Spina Bifida
    • 9.
      • 2. Looking Good
        • Meal planning and diet
        • Weight management
        • Physical activity
      Health Guide for Adults Living with Spina Bifida
    • 10.
      • 2. Looking Good
        • Meal planning and diet
        • Weight management
        • Physical activity
      Health Guide for Adults Living with Spina Bifida
    • 11. Health Guide for Adults Living with Spina Bifida
      • 3. Living Healthy with Spina Bifida
      • Bladder care  Skin care
      • Bowel care  Latex allergy
      • Head and spine  Sexual function
              • Aging
    • 12.
      • 3. Living Healthy with Spina Bifida
      • Bladder care  Skin care
      • Bowel care  Latex allergy
      • Head and spine  Sexual function
              • Aging
      Health Guide for Adults Living with Spina Bifida
    • 13.
      • 4. Managing My Own Health
      • Being my own advocate
      • Preparing for my health care visits
      • Managing my health insurance
      Health Guide for Adults Living with Spina Bifida
    • 14. Appendix A – Personal Health Record Appendix B – Background on Spina Bifida Health Guide for Adults Living with Spina Bifida
    • 15. Personal Health Care Record will help you:
      • Organize your health information in a central place.
      • Keep a record of the health care services you receive.
      • Track changes in your medications and treatments.
      • Tell health care providers about your medical condition.
      • Prepare for and make health care appointments.
    • 16.
      • Every year or every six months
      • After any changes in your condition, treatment, medications, health care providers, or if you have any major procedures.
      Update your Personal Health Care Record
    • 17. Keeping your Personal Health Care Record
      • Take the notebook with you when visiting health care providers.
      • Make copies to keep on file at home and with your health care providers.
      • Make copies of your Personal Information. Keep copies of this information:
        • in your purse/wallet  with your health care providers
        • at home  with your emergency contact person
        • in your vehicle
    • 18.
      • Primary Diagnosis
        • Latex Allergies
      • Emergency Contact
        • Advance Directive
      Personal Information
    • 19. Family History (parents, sibling and grandparents) Alcohol Abuse Asthma Cancer Diabetes Dementia Depression Heart Disease High Blood Pressure Stroke
    • 20.
      • Primary Hospital
      • Primary Care Provider
      • Specialty Care Providers
        • Physical Medicine
        • Urology
        • Orthopedics
        • Neurosurgery
      Healthcare Providers
      • Nurse Practitioner
      • Occupational Therapist
      • Physical Therapist
      • Psychologist
      • Dentist
      • Gynecologist
      • Optician/ Ophthalmologist
    • 21.
      • Primary Insurance information
      • Secondary Insurance information
      • Case Manager
      Insurance Information
    • 22.
      • List of equipment, supplies and personal care items
      • Name and contact information of vendor
      • Date of Purchases
      Equipment/Supplies
    • 23.
      • Name of Pharmacy and contact information (including fax number)
      • Allergies and Reactions
      • Current list of medications
      Medications
    • 24.
      • Date
      • Fever
      • Other Symptoms
      • Antibiotics
      • Length of Treatment
      Urinary Tract Infection Tracking Form
    • 25.
      • Date
      • Time of Stool
      • In Toilet
      • Accident- Activity at time of accident
      • Amount/Consistency
      • Comments (include current bowel management interventions- i.e. result of enema, suppository etc.)
      Bowel Movement Tracking Form – Trouble Shooting
    • 26.
      • Make health care appointments.
      • Coordinate the scheduling of multiple health care appointments.
      • Remember and keep scheduled health care appointments.
      Health Care Appointment Scheduler
    • 27.
      • 1. Use a calendar for the current year to make and record your health care appointment.
      • 2. Use the Health Care Appointment Scheduler form to record:
          • Date of appointment.
          • Name of health care provider that you have
          • appointment with.
          • Reason for appointment and care received.
          • Date of next appointment with provider.
      Health Care Appointment Scheduler
    • 28. 3. Record health care appointments on calendar and Health Care Appointment Scheduler form. 4. Take your calendar and Health Care Appointment Scheduler to the health care appointment, and use to schedule future appointment with your provider. Health Care Appointment Scheduler…
    • 29.
      • Ask question before taking any new medications.
      • Use the tips on refilling medications.
      Health Care Appointment Scheduler…
    • 30. Blood Pressure Begin checks once a year Breast Exam Once a year Cholesterol Begin checks once a year at age 20 Colorectal Cancer Begin checks once a year Colonoscopy Beginning at age 50 Dental Exam Every 6 months Screening and Diagnostic Test Checklist Depression As needed, speak with physician Diabetes Test Begin checks once a year Eye Exam At least once a year Height and Weight Once a year Mammogram Begin checks once a year at (women) age 40, depending on risk Osteoporosis Speak with physician about (Bone density) when to start bone density test
    • 31. Pap Smear and related Every two years screening (women) Prostate Cancer and Begin checks once a year related screening (men) Flu Shot Speak with physician Hepatitis B Shots Speak with physician Pneumonia Shot Speak with physician Tetanus-diptheria Shot Every 10 years Screening and Diagnostic Test Checklist
    • 32. Bladder Ultrasound As needed, based on symptoms CT Scan/MRI As needed, based on symptoms Cystoscopy 10 years after augmentation, annually thereafter Renal Blood Test As needed, based on symptoms Renal Scan As needed, based on symptoms Renal Ultrasound At least every two years Spine X-Ray/MRI As needed, based on symptoms Urodynamic studies As needed, based on symptoms Urinalysis As needed, based on symptoms VCUG As needed, based on symptoms SPINA BIFIDA SPECIFIC TESTS
    • 33.
      • Informing Staff of Latex precautions
      • Bring medication and glasses
      • Take Personal Health Care Record with you
      • Tell close friend or family where you are
      • Actively participate in care
      • See guide for other suggestions
      Suggestions for Hospital Stay
    • 34.
      • HOSPITAL STAY TRACKING FORM
        • SURGERIES AND NON SURGICAL
      Suggestions for Hospital Stay
    • 35. Appendix B Medical Facts About Spina Bifida
      • Purpose:
      • give copies to HCP or anyone you want to educate about spina bifida.
    • 36. Update the guide when you change your clocks (Fall and Spring) TIPS FOR USING HEALTH GUIDE
    • 37. Marlene Lutkenhoff, RN, MSN Chair, Editorial Review Committee Cincinnati Children’s Hospital Medical Center Email: [email_address] Adriane K. Griffen, MPH, CHES Director, Public Health Programs Email: [email_address] Download a copy from www.sbaa.org More Information

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