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Web 2.0 In Healthcare
 

Web 2.0 In Healthcare

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A presentation picking out some useful Web 2.0 tools for health care/hospital staff

A presentation picking out some useful Web 2.0 tools for health care/hospital staff

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Web 2.0 In Healthcare Web 2.0 In Healthcare Presentation Transcript

  • Web 2.0 in healthcare
  • Presentation outline
    • What is Web 2.0?
    • Why is it relevant?
    • Current uses in healthcare – Health 2.0, Medicine 2.0 (examples)
    • A Web 2.0 toolbox
    • Security, Data Protection, Privacy & Copyright
    • Patients and the Web
    • General tips
  • Daniel F Pigatto at http://www.flickr.com/photos/pigatto/332193181/
  • By Ben Sheldon using Inkscape ( http://inkscape.org/ ) at: http://www.flickr.com/photos/bensheldon/212159782/
  • What is Web 2.0 – a definition
    • “ Web 2.0 is the network as platform, spanning all connected devices; Web 2.0 applications are those that make the most of the intrinsic advantages of that platform: delivering software as a continually-updated service that gets better the more people use it, consuming and remixing data from multiple sources, including individual users, while providing their own data and services in a form that allows remixing by others, creating network effects through an "architecture of participation," and going beyond the page metaphor of Web 1.0 to deliver rich user experiences.”
    • ( Ref: http://radar.oreilly.com/archives/2005/10/web-20-compact-definition.html )
  • Web 1.0 v Web 2.0
    • Web 1.0
    • Read only
    • Web experts and web visitors
    • You visit sites
    • Fairly static content
    • Technology “slow”
    • Sites
    • Locked into PC
    • Web 2.0
    • Read & write
    • Everyone can participate
    • Sites visit you
    • Constant updating
    • Permanent beta
    • Tools & services
    • Multiple devices
  • With it, you can manage your information http://www.connotea.org
  • ..network with peers http://www.syndicom.com/spineconnect/
  • Choose how you search http://www.gopubmed.org
  • Innovation & problem-solving http://spokentext.net/
  • Join (or create) virtual communities http://www.whatnow.org.uk/blogs/nurse
  • Attend Conferences remotely.. http://jama.ama-assn.org/authorintheroom/authorindex.dtl
  • Why is it relevant?
    • So many functions…..
    • … so many benefits…..
    • … .. almost all of them FREE!
    • It has changed the nature and scope of the web forever
    • It’s the next step in the evolution of the web, and is central to the next phase
    • It’s everywhere you look
    • Knowing what it is, you can be aware of its pitfalls
  • Uses in Healthcare Health 2.0 / Medicine 2.0
    • Eysenbach G Medicine 2.0: Social Networking, Collaboration, Participation, Apomediation, and Openness J Med Internet Res 2008;10(3):e22 URL: http://www.jmir.org/2008/3/e22/
    Healthcare consumers Healthcare professionals Scientific research
  • Use in the development of guidelines
    • “ Using a single entry source for the entire anesthesia community to initiate and develop guidelines with true consensus is a realistic goal based on the model created by Wikipedia.”
    • (from: Glass, Peter S.A. “Practice guidelines for the management of postoperative nausea and vomiting: past, present, and future” Anesthesia & Analgesia 2007, 105(6) 1528-9)
  • Web 2.0 examples in medicine Ref: BMJ VOLUME 333 23-30 DECEMBER 2006, pp 1283-1284 Application Website Purpose Bloglines www.bloglines.com RSS reader Citizendium www.citizendium.org/ Expert wiki Connotea www.connotea.org Online reference organiser Del.icio.us http://del.icio.us Website tagging Flickr www.flickr.com/ Photo sharing Ganfyd www.ganfyd.org Medical wiki Google blogsearch http://blogsearch.google.com Blog searches Google health http://www.google.com/coop/cse Create your own search tool MedWorm http://medworm.com/ RSS aggregator SlideShare http://slideshare.net Slide sharing Wikipedia http://en.wikipedia.org/wiki/ All purpose wiki YouTube www.youtube.com/ Video snippets
  • Online Journal Club
  • Hospital Education – Second Life
  • Sample Web 2.0 toolbox
    • Tag & save references – sign up to Connotea ( http://www.connotea.org ); if you use Firefox, get the Zotero reference management tool ( http://www.zotero.org ), or tag and save your favourite sites with Delicious ( http://delicious.com/ )
    • Choose a feed reader to manage RSS feeds from your preferred journals, blogs, podcasts or websites (or have feeds e-mailed to you using http://www.feedmailer.net/ )
    • Use http://www.medworm.com/ to pull together a range of feeds on your topic
    • Use PubMed RSS feature to get updated anytime something new is published on your search.
    • Set up a Wiki to manage a project http://www.pbwiki.com (some nicely presented tips on maintaining a community/project wiki are in the slideshare presentation, at: http://slimurls.com/?UsingWikis )
    • Join or set up an Online Journal Club e.g. http://journalreview.org
    • Record a document with http://spokentext.net and listen to it on your iPod/MP3 player on the way to or from work.
    • See if Seminars or Conferences will be made available online.
    • Create an online demonstration from your PC with http://camstudio.org/
    • Look for presentations or video tutorials on any topic with http://www.slideshare.net or http://www.youtube.com
  • Manage your information – the web comes to you
    • RSS “Really Simple Syndication”
      • Choose a feed reader / aggregator
      • Register – they are usually available for free
      • Start subscribing to feeds from your selected sites
      • As new content is added to your chosen sites, it is stored in your feed reader.
  • Selecting RSS feeds
    • Look for the logo on the page (see sample instructions below from BMJ site):
  • Tried & tested RSS readers
    • http://www.bloglines.com
    • http://www.newsgator.com/Individuals/FeedDemon/Default.aspx
    • http://www.netvibes.com
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  • Useful sources of RSS feeds
    • Your preferred e-journals
    • Referenced blogs/feeds
  • Try an RSS Aggregator
  • Find blogs with http://blogsearch.google.com
  • Useful sources of RSS….
    • Press or TV news websites
    • References from Healthcare bodies/associations or affiliations – including past or future Conferences
  • http://www.ecancermedicalscience.com/
  • Useful sources of RSS feeds
    • Feeds referenced in other feeds
    • Your PubMed searches
  • Copyright, privacy, data protection & security online Protect yourself, and others
  • “ Let’s go crazy”….. http://www.youtube.com/watch?v=N1KfJHFWlhQ
  • Copyright & web 2.0
    • Once it’s published, protection exists automatically.
    • Licenses – as legislation can’t keep pace with online evolution, the default legislation is the License Agreement.
    • Tip: you can double-check a license or policy - use Ctrl & F, look for keywords in the document e.g. “allow” “permit” “unauthori*” “illegal” “protect” etc. NB This is not by any means foolproof.
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  • Creative Commons License
    • Most Web 2.0 tools, and much of the content, is protected by Creative Commons license
    • Types of Creative Commons license (from most to least restrictive)
      • Attribution Non-commercial No Derivatives
      • Attribution Non-commercial Share Alike
      • Attribution Non-commercial
      • Attribution No Derivatives
      • Attribution Share Alike
      • Attribution
  • Protecting your privacy
    • Create a separate e-mail account (gmail, yahoo etc) for social or networked sites
    • No need to provide your real name (unless you want people to recognise you)
    • Avoid providing any personal information – generally, this information is not necessary but if it is a required feature, then find out why they need it (e.g. DoB to verify you are over 18) but don’t be afraid to stretch the truth.
      • Take a look at “the dangers of Facebook” : http://student.bmj.com/issues/08/10/life/354.php
      • Then consider using: http://www.thecandidatenetwork.com
    • Check a site’s privacy policy
    • When the site allows it, go for the closed environment option e.g. “invite only”, or “edit” permissions restricted to those you trust.
    • Watch for “opt in” or “opt out” features (e.g. Google toolbar)
    • For children use either http://kids.quintura.com or http://www.gogooligans.com/
  • COPYRIGHT PROTECTED
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  • Protecting patients
    • HIPAA (The Health Insurance Portability & Accountability Act) set up to protect patient privacy is summarised in: http://casesblog.blogspot.com/2005/07/case-reports-and-hipaa-rules.html
    • A good background article on patient behaviour plus the type of sites available is at: http://www.iht.com/articles/2008/10/02/arts/sninternet.php Schwartz: “Surfing for a second opinion”
    • Also, Broom, Alex et al: The role of the internet in cancer patients' engagement with complementary and alternative treatments. Health, 12(2):139-155 (2008)
    • Patients increasingly use the internet to source health information. Where possible, point them to authoritative sites on their condition; also provide them with guidelines on assessing sites e.g.
      • Get the HONcode toolbar:
      • ( http://www.hon.ch/HONcode/Plugin/Plugins.html )
      • ..or search approved sites at: http://www.hon.ch/HONcode/Hunt/
      • Use the checklist at: http://www.virtualchase.com/quality/checklist_print.html
      • Google your specific discipline – see what appears in the first 2-3 pages
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  • Patient tools
    • The “Personally Controlled Health Record” - they can store their family medical history using e.g. Google Health at: http://www.google.com/health
    • Patients can hold an interactive consultation with an ER physician at: http://www.freemd.com
      • Read Mandl “Tectonic shifts in the health information economy” N Engl J Med. 2008 Apr 17;358(16):1732-7.
  • Microsoft’s Health Vault: http://www.healthvault.com/
  • Patient privacy & clinical trials/research “ Robert Shelton was a successful real estate developer who became wealthy creating buildings such as the Palm Springs Convention Center. But his world was rocked when his son was diagnosed with a rare genetic disorder. He then faced a quandary. He needed to find treatment for his son, but doing so would cost his family its privacy. That dilemma ultimately spurred a business,  Private Access , which is coming out of stealth today at the  Health 2.0 conference  in San Francisco. The company allows people with health conditions to describe their problems anonymously. It also posts news of clinical trials of new treatments. It thus allows medical researchers and potential research subjects to find each other.” Takahashi, Dean (23/10/2008): Private Access seeks to share health data for patients without giving up privacy from http://venturebeat.com , accessed 31 st October 2008
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  • Possible pitfalls..
    • There is a learning curve and this initially takes a bit of time.
    • Confidentiality? What do they want to know – is it necessary?
    • Hospital firewall blocks some of the applications – will need to ask for release from ICT.
    • Legal issues – copyright (e.g. music downloading), privacy.
    • Trying to reference a transient source
  • TIP: Citing from a transient source e.g. Wikipedia
  • COPYRIGHT PROTECTED