Working with Communities
Katrice D. Cain, MA
Program Development Manager
Case Center for Reducing Health Disparities
The I...
Overview
• Brief overview of the Center for Reducing Health
Disparities
• Community Engagement in Research
• Current Work:...
Case Center for Reducing
Health Disparities
• Ash Sehgal, MD, Director
• 2004- Created by CWRU and MHMC
• 2007- Funded thr...
Community Engagement

The process of working collaboratively with and through
groups of people affiliated by geographic pr...
Community Engagement in Research
• Involves the community in each step of the research
process
• Requires listening and re...
Benefits of Community Engagement
• Builds rapport
• Dispels myths about research- “Helicopter
Research”
• Improves communi...
Community Partnership Committee
• Reviews activities, identifies optimal
approaches to engaging Cleveland’s
communities an...
Community Resident Researchers
• 30+ community resident researchers in Cleveland
• Training Program Includes:
• Overview o...
Community Resident Researchers
• Discuss ideas with researchers and staff
• Participate in collecting research data
• Revi...
Cultural Competency
• The ability to work effectively with individuals of
different cultural backgrounds
• A lack of cultu...
The Importance of
Cultural Competency
– Enables researchers to understand the needs and
perspectives of different groups
–...
Cultural Competency and the
Research Process

Research
Question

Study Design

Recruitment

Data Collection

Analysis

Dis...
Cultural Competency
• Increasing researcher’s knowledge,
awareness, skill, and confidence through:
– Seminars
– Education ...
Community-Based Research
Consult Service
• Community-Based Research (CBR) takes place in community
settings and involves c...
Community-Based Research
Consult Service
• Provided assistance to 31 Researchers (faculty members,
physicians, students, r...
Community-Based Research
Consult Service
Research
Project
Development
Program
Evaluation

IRB Application
Process

Data Co...
Spanish Translation Service
• Spanish translations/adaptions and English
back translations for the following:
• Questionna...
CBR in Action
• Collaboration between the CRHD and licensed
massage therapists
• Primary Aim: Determine the effectiveness ...
Effectiveness of Intradialytic Massage
on Cramping in Dialysis Patients
• Participants included 32 (16 intervention, 16
co...
Effectiveness of Intradialytic Massage
on Cramping in Dialysis Patients
• Intervention group received a 20
minute massage ...
Effectiveness of Intradialytic Massage on
Cramping in Dialysis Patients
Intervention
n = 11

Control
n = 15

5.4 (0.8)

0
...
Effectiveness of Intradialytic Massage
on Cramping in Dialysis Patients
• Important Considerations
– Knowledge and Awarene...
Conclusion
• Seek and incorporate community input
• Establish bi-directional relationships with the
community
• Incorporat...
Contact Information
Katrice D. Cain, MA
216-778-8467
kcain@metrohealth.org

ReduceDisparity.org
Questions, Comments,
Final Thoughts

2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
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K.cain presentation pbrn festival_12.07.2013

  1. 1. Working with Communities Katrice D. Cain, MA Program Development Manager Case Center for Reducing Health Disparities The Intersection of Primary Care & Public Health: Practice-Based Research Workshop 2013 Ohio Practice-Based Research Festival 2.0 December 7, 2013
  2. 2. Overview • Brief overview of the Center for Reducing Health Disparities • Community Engagement in Research • Current Work: – Community Partnership Committee and Community Resident Researchers – Cultural Competency in Research – CBR Consult Service for Researchers 2013 Ohio Practice-Based Research Festival 2.0 December 7, 2013
  3. 3. Case Center for Reducing Health Disparities • Ash Sehgal, MD, Director • 2004- Created by CWRU and MHMC • 2007- Funded through a P60 & CTSC grant from the NIH 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
  4. 4. Community Engagement The process of working collaboratively with and through groups of people affiliated by geographic proximity, special interest, or similar situations to address issues affecting the well-being of those people Centers for Disease Control and Prevention. (1997). Principles of community engagement (1st ed.) Atlanta (GA): CDC/ATSDR Committee on Community Engagement. 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
  5. 5. Community Engagement in Research • Involves the community in each step of the research process • Requires listening and responding to the needs of the community • Focuses on building upon community strengths and assets • Includes disseminating research findings to the community 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
  6. 6. Benefits of Community Engagement • Builds rapport • Dispels myths about research- “Helicopter Research” • Improves community health outcomes • Reduces health disparities • Increases success rates of research studies 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
  7. 7. Community Partnership Committee • Reviews activities, identifies optimal approaches to engaging Cleveland’s communities and institutions, and develops ideas for new projects • Comprised of: – Community Residents – Research Study Participants – Community-Based Providers – Faculty engaged in Community-Based Research 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
  8. 8. Community Resident Researchers • 30+ community resident researchers in Cleveland • Training Program Includes: • Overview of the research process • Research Ethics • How to discuss research studies with the community • Continuing Research Education Credit (CREC) Certified 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
  9. 9. Community Resident Researchers • Discuss ideas with researchers and staff • Participate in collecting research data • Review study materials (i.e. research flyers or questionnaires) • Lead and/or participate in focus groups • Help to explain research studies to study participants • Review research study results 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
  10. 10. Cultural Competency • The ability to work effectively with individuals of different cultural backgrounds • A lack of cultural competence on the part of researchers may hinder their ability to engage certain communities • There is an increasing need to develop and implement research studies that are culturally relevant to the needs of various cultural groups 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
  11. 11. The Importance of Cultural Competency – Enables researchers to understand the needs and perspectives of different groups – Increases community outreach and engagement – Contextualizes research knowledge – Increases the community relevance of research findings 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
  12. 12. Cultural Competency and the Research Process Research Question Study Design Recruitment Data Collection Analysis Dissemination of Findings 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
  13. 13. Cultural Competency • Increasing researcher’s knowledge, awareness, skill, and confidence through: – Seminars – Education Trainings – Presentations – Book Clubs – Toolkit for Researchers 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
  14. 14. Community-Based Research Consult Service • Community-Based Research (CBR) takes place in community settings and involves community members in the design and conduct of research • CBR Consult Service assists faculty members, researchers, residents, students, community members, and community organizations in developing quality community-based research 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
  15. 15. Community-Based Research Consult Service • Provided assistance to 31 Researchers (faculty members, physicians, students, residents, and community members) and 11 Community-Based Organizations 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
  16. 16. Community-Based Research Consult Service Research Project Development Program Evaluation IRB Application Process Data Collection and Database Development Needs Assessment Grants Assistance and Funding Survey Development and Refinement 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
  17. 17. Spanish Translation Service • Spanish translations/adaptions and English back translations for the following: • Questionnaires • Study Instruments • Flyers • Consent Forms 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
  18. 18. CBR in Action • Collaboration between the CRHD and licensed massage therapists • Primary Aim: Determine the effectiveness of intradialytic massage on the frequency and severity of cramping among hemodialysis patients prone to lower extremity cramping during treatment. • Received funding through a PBRN Microgrant 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
  19. 19. Effectiveness of Intradialytic Massage on Cramping in Dialysis Patients • Participants included 32 (16 intervention, 16 control) hemodialysis patients • 3 licensed massage therapists were trained in the study massage technique and tested for inter-therapist consistency 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
  20. 20. Effectiveness of Intradialytic Massage on Cramping in Dialysis Patients • Intervention group received a 20 minute massage during each hemodialysis treatment for 2 weeks (6 massage sessions) • Control group received usual care by dialysis staff • All participants were interviewed by study staff at the beginning and end of the study regarding his or her experience with cramping pain 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
  21. 21. Effectiveness of Intradialytic Massage on Cramping in Dialysis Patients Intervention n = 11 Control n = 15 5.4 (0.8) 0 mean (SD), n 3.2 (2.4) 2.5 (3.3) 0.05 Baseline cramping at dialysis (interview), mean (SD), n 2.7 (2.3) 2.5 (1.7) 1 Change in cramping at home from pre -study to post study (interview), mean (SD), n -2.5 (2.4) -0.3 (1.0) 0.005 Change in cramping at dialysis from pre-study to post study (interview), mean (SD), n -1.6 (2.7) -0.9 (1.5) 0.44 Total massages received, mean (SD), n Baseline cramping at home (interview), P value 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
  22. 22. Effectiveness of Intradialytic Massage on Cramping in Dialysis Patients • Important Considerations – Knowledge and Awareness of Target Population – Respect of Persons and Rapport Building – Clear explanation of Informed Consent Form – Participant Stipend ($25 Giant Eagle Gift Card) • Future Directions: Design study on larger scale 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
  23. 23. Conclusion • Seek and incorporate community input • Establish bi-directional relationships with the community • Incorporate cultural considerations into all aspects of the research process • Turn data into action! • Disseminate research findings to the community 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
  24. 24. Contact Information Katrice D. Cain, MA 216-778-8467 kcain@metrohealth.org ReduceDisparity.org
  25. 25. Questions, Comments, Final Thoughts 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013

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