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K.cain presentation pbrn festival_12.07.2013
 

K.cain presentation pbrn festival_12.07.2013

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    K.cain presentation pbrn festival_12.07.2013 K.cain presentation pbrn festival_12.07.2013 Presentation Transcript

    • Working with Communities Katrice D. Cain, MA Program Development Manager Case Center for Reducing Health Disparities The Intersection of Primary Care & Public Health: Practice-Based Research Workshop 2013 Ohio Practice-Based Research Festival 2.0 December 7, 2013
    • Overview • Brief overview of the Center for Reducing Health Disparities • Community Engagement in Research • Current Work: – Community Partnership Committee and Community Resident Researchers – Cultural Competency in Research – CBR Consult Service for Researchers 2013 Ohio Practice-Based Research Festival 2.0 December 7, 2013
    • Case Center for Reducing Health Disparities • Ash Sehgal, MD, Director • 2004- Created by CWRU and MHMC • 2007- Funded through a P60 & CTSC grant from the NIH 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
    • Community Engagement The process of working collaboratively with and through groups of people affiliated by geographic proximity, special interest, or similar situations to address issues affecting the well-being of those people Centers for Disease Control and Prevention. (1997). Principles of community engagement (1st ed.) Atlanta (GA): CDC/ATSDR Committee on Community Engagement. 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
    • Community Engagement in Research • Involves the community in each step of the research process • Requires listening and responding to the needs of the community • Focuses on building upon community strengths and assets • Includes disseminating research findings to the community 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
    • Benefits of Community Engagement • Builds rapport • Dispels myths about research- “Helicopter Research” • Improves community health outcomes • Reduces health disparities • Increases success rates of research studies 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
    • Community Partnership Committee • Reviews activities, identifies optimal approaches to engaging Cleveland’s communities and institutions, and develops ideas for new projects • Comprised of: – Community Residents – Research Study Participants – Community-Based Providers – Faculty engaged in Community-Based Research 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
    • Community Resident Researchers • 30+ community resident researchers in Cleveland • Training Program Includes: • Overview of the research process • Research Ethics • How to discuss research studies with the community • Continuing Research Education Credit (CREC) Certified 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
    • Community Resident Researchers • Discuss ideas with researchers and staff • Participate in collecting research data • Review study materials (i.e. research flyers or questionnaires) • Lead and/or participate in focus groups • Help to explain research studies to study participants • Review research study results 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
    • Cultural Competency • The ability to work effectively with individuals of different cultural backgrounds • A lack of cultural competence on the part of researchers may hinder their ability to engage certain communities • There is an increasing need to develop and implement research studies that are culturally relevant to the needs of various cultural groups 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
    • The Importance of Cultural Competency – Enables researchers to understand the needs and perspectives of different groups – Increases community outreach and engagement – Contextualizes research knowledge – Increases the community relevance of research findings 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
    • Cultural Competency and the Research Process Research Question Study Design Recruitment Data Collection Analysis Dissemination of Findings 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
    • Cultural Competency • Increasing researcher’s knowledge, awareness, skill, and confidence through: – Seminars – Education Trainings – Presentations – Book Clubs – Toolkit for Researchers 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
    • Community-Based Research Consult Service • Community-Based Research (CBR) takes place in community settings and involves community members in the design and conduct of research • CBR Consult Service assists faculty members, researchers, residents, students, community members, and community organizations in developing quality community-based research 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
    • Community-Based Research Consult Service • Provided assistance to 31 Researchers (faculty members, physicians, students, residents, and community members) and 11 Community-Based Organizations 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
    • Community-Based Research Consult Service Research Project Development Program Evaluation IRB Application Process Data Collection and Database Development Needs Assessment Grants Assistance and Funding Survey Development and Refinement 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
    • Spanish Translation Service • Spanish translations/adaptions and English back translations for the following: • Questionnaires • Study Instruments • Flyers • Consent Forms 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
    • CBR in Action • Collaboration between the CRHD and licensed massage therapists • Primary Aim: Determine the effectiveness of intradialytic massage on the frequency and severity of cramping among hemodialysis patients prone to lower extremity cramping during treatment. • Received funding through a PBRN Microgrant 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
    • Effectiveness of Intradialytic Massage on Cramping in Dialysis Patients • Participants included 32 (16 intervention, 16 control) hemodialysis patients • 3 licensed massage therapists were trained in the study massage technique and tested for inter-therapist consistency 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
    • Effectiveness of Intradialytic Massage on Cramping in Dialysis Patients • Intervention group received a 20 minute massage during each hemodialysis treatment for 2 weeks (6 massage sessions) • Control group received usual care by dialysis staff • All participants were interviewed by study staff at the beginning and end of the study regarding his or her experience with cramping pain 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
    • Effectiveness of Intradialytic Massage on Cramping in Dialysis Patients Intervention n = 11 Control n = 15 5.4 (0.8) 0 mean (SD), n 3.2 (2.4) 2.5 (3.3) 0.05 Baseline cramping at dialysis (interview), mean (SD), n 2.7 (2.3) 2.5 (1.7) 1 Change in cramping at home from pre -study to post study (interview), mean (SD), n -2.5 (2.4) -0.3 (1.0) 0.005 Change in cramping at dialysis from pre-study to post study (interview), mean (SD), n -1.6 (2.7) -0.9 (1.5) 0.44 Total massages received, mean (SD), n Baseline cramping at home (interview), P value 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
    • Effectiveness of Intradialytic Massage on Cramping in Dialysis Patients • Important Considerations – Knowledge and Awareness of Target Population – Respect of Persons and Rapport Building – Clear explanation of Informed Consent Form – Participant Stipend ($25 Giant Eagle Gift Card) • Future Directions: Design study on larger scale 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
    • Conclusion • Seek and incorporate community input • Establish bi-directional relationships with the community • Incorporate cultural considerations into all aspects of the research process • Turn data into action! • Disseminate research findings to the community 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013
    • Contact Information Katrice D. Cain, MA 216-778-8467 kcain@metrohealth.org ReduceDisparity.org
    • Questions, Comments, Final Thoughts 2013 Ohio Practice-Based Research Festival 2.0 - December 7, 2013