The Activation of Q-PACA New Model for Consumer Involvement in         Quality Management                  Adam Thompson  ...
Session Agenda    Introductions                      5 Minutes    Overview of Patient Activation    15 Minutes    Building...
Session Objectives    • Introduce patient activation as a method for improving      consumer involvement in quality manage...
Introductions4
Reflection Question    What are the greatest barriers to     patients being involved on     quality management teams?5
Patient Activation    “A fundamental belief underlying efforts to    reshape health care institutions and systems is     t...
Four Stages of Patient Activation    Patients:      1. Play important roles in self-management      2. Possess knowledge n...
History of Involvement    •   Fingerprints – The Denver Principles; Authors and Souls    •   Blueprints – The Ryan White P...
Methods of Involvement    • Agitation    • Activism    • Advocacy9
Quality Champions into Quality Experts     • Champion        (noun) - a person who vigorously supports or defends a      ...
Identifying a Champion     • Draw from your ENTIRE patient population     • Choose patients who         Are self-managing...
Preparing a Champion     • Recognition of patient experience as only a foundation     • Identification of Capacities for Q...
Developing an Expert     • Adult Learning Theory     • Facilitation of Disenfranchised Learners         Math         Sci...
A New Model for Patient Involvement14
IHI Collaborative Learning Model     The Breakthrough Series: IHI’s Collaborative Model for Achieving Breakthrough Improve...
Securing Buy-In for Success                    Funders               •   HRSA/HAB                                         ...
Doing Things Differently     • Planning         Integration of Patient Peer Experts            • Faculty & Response Team ...
Provider Capacity     • Pre-Learning Session Two         Solicited Barriers to Patient Involvement         Brainstormed ...
Patient Capacity Building     • Action Period Two         Basics of Quality Improvement           • Quality Improvement P...
Patient Capacity Building     • Pre-Learning Session Three         Becoming a Quality Advocate            • Agitation, Ac...
Patient Capacity Building     • Learning Session Four and Action Period Four         Organizational Assessment           ...
Outcomes     • Formation of Core Group of Patient Participants in       Collaborative (Q-PAC)         Quality Management ...
Lessons Learned     • Patient Role Models and Leadership     • Opportunities for Enhanced Learning         Storyboards as...
Playing with Data24
Types of Data     • Quantitative Data – counting things         Objective Measurement         Example: There are 574 pat...
TCQ Game: Bag of Data     1. Select a Recorder and        Facilitator     2. Open and examine the        contents of your ...
Rationale, Purpose, and Outcomes     • Patients tend to ask more qualitative questions related to       aspect of care    ...
Patient Centered Data Reporting28
Presenting Data to Patients     1. Determine if there is particular data your patients NEED to        have     2. Ask your...
1.    Interestingness                                                                                                     ...
Telling Your Story     25% of patients in the      60% of patients reported      clinic received annual   stigma as a sign...
National HIV/AIDS Strategy32
DC Patient Involvement Champions33
Collaborative Team Members     Moderator:     • Adam Thompson     Panelists     • Jane Caruso          DC Collaborative F...
THANK YOU• The National Quality Center• Health Resources and Services  Administration• DC Department of Health  (HAHSTA)• ...
Contact Information     • Adam Thompson         AdamTThompson@gmail.com     • Amelia Khalil         ameliakhalil@gmail.c...
Upcoming SlideShare
Loading in …5
×

Ryan White All Grantee Meeting

460 views

Published on

This presentation was delivered at the 2012 Ryan White All Grantee meeting to communicate a new method for patient involvement in quality management

Published in: Health & Medicine
0 Comments
0 Likes
Statistics
Notes
  • Be the first to comment

  • Be the first to like this

No Downloads
Views
Total views
460
On SlideShare
0
From Embeds
0
Number of Embeds
2
Actions
Shares
0
Downloads
0
Comments
0
Likes
0
Embeds 0
No embeds

No notes for slide
  • Fix slide design
  • Animations:Where participants are often asked to consider patient representatives in collaborativeWhere participants are challenged to find a patient participantWhere most clinics begin to seriously look for a patient participantWhere patients should first be includedWhere you should consider whether faculty has the capacity to work with patient participantsWhere we began our work and achieved these outcomes in the DC Collaborative
  • Ryan White All Grantee Meeting

    1. 1. The Activation of Q-PACA New Model for Consumer Involvement in Quality Management Adam Thompson Tuesday, November 27, 3:30-5 pm Delaware A
    2. 2. Session Agenda Introductions 5 Minutes Overview of Patient Activation 15 Minutes Building Patient Capacity for 30 Minutes Meaningful Involvement Patient Centered Data Reporting 10 Minutes Panel Discussion: Q-PAC and the 30 Minutes DC Collaborative2
    3. 3. Session Objectives • Introduce patient activation as a method for improving consumer involvement in quality management activities at the clinical and systems levels. • Provide participants with a replicable model of consumer involvement in quality management activities • Provide participants with a framework for introducing patient centered data for consumers in quality management activities.3
    4. 4. Introductions4
    5. 5. Reflection Question What are the greatest barriers to patients being involved on quality management teams?5
    6. 6. Patient Activation “A fundamental belief underlying efforts to reshape health care institutions and systems is that patients who are activated to participate in their own health care are more likely to adopt healthy behaviors leading to improved health outcomes.” (van Korff et al. 1997; Bodenheimer et al. 2002a, b’ Mosen et al. 2007)6
    7. 7. Four Stages of Patient Activation Patients: 1. Play important roles in self-management 2. Possess knowledge needed to manage their health 3. Act by using their skills and behaviors to maintain well-being 4. Manage stress and stay the course7
    8. 8. History of Involvement • Fingerprints – The Denver Principles; Authors and Souls • Blueprints – The Ryan White Program; Drafters and Supporters • Nuts and Bolts – Community Planning Members • Betterment – Quality Improvement Advocates8
    9. 9. Methods of Involvement • Agitation • Activism • Advocacy9
    10. 10. Quality Champions into Quality Experts • Champion  (noun) - a person who vigorously supports or defends a person or cause • Expert  (noun) - a person who is very knowledgeable about or skillful in a particular area  (adjective) - having or involving a great deal of knowledge or skill in a particular area10
    11. 11. Identifying a Champion • Draw from your ENTIRE patient population • Choose patients who  Are self-managing patients  Demonstrate prosocial characteristics  Are comfortable with and have access to technology  Are able to commit to a defined period of involvement  Can work collaboratively  Express a desire to learn new skills • The “squeaky wheel” might not be the best choice11
    12. 12. Preparing a Champion • Recognition of patient experience as only a foundation • Identification of Capacities for Quality Management  Performance Measurement  Computational Skills • Statistical Calculations • Evaluating Data  Quality Improvement & Management Models • Advocacy Skills12
    13. 13. Developing an Expert • Adult Learning Theory • Facilitation of Disenfranchised Learners  Math  Science • Building Capacity of Non-Medical Professionals  Performance Measurement  Data Analysis  Quality Management13
    14. 14. A New Model for Patient Involvement14
    15. 15. IHI Collaborative Learning Model The Breakthrough Series: IHI’s Collaborative Model for Achieving Breakthrough Improvement. IHI Innovation Series white paper. Boston: Institute for Healthcare Improvement; 2003.15
    16. 16. Securing Buy-In for Success Funders • HRSA/HAB • Faculty Patients Faculty • DC Response Team • Patients • HAHSTA Participants Grantees  Part A and Part B Sub- • DC EMA Clinics Grantees  Part C and Part D16
    17. 17. Doing Things Differently • Planning  Integration of Patient Peer Experts • Faculty & Response Team  Development of Learning Session Agenda • Implementation  Patient Capacity Building during Action Periods  Patient Generated Presentations  Identification of Enhanced Patient Learning Opportunities • Evaluation  Patient Evaluation of Collaborative Aims and Goals17
    18. 18. Provider Capacity • Pre-Learning Session Two  Solicited Barriers to Patient Involvement  Brainstormed Myths of Patient Involvement  Developed Solutions and Strategies to Barriers/Myths • Engaged NQC Consultants and Consumer Advisory Committee • Peer Consultant and Patient Representative from Response Team delivered “Barriers to Patient Involvement and Strategies to Overcome” presentation during Learning Session Two18
    19. 19. Patient Capacity Building • Action Period Two  Basics of Quality Improvement • Quality Improvement Principles • Quality Management Terminology • Improvement Models and Methodology  Effective Communication  Working in Teams • Team Roles and Functions • Team Decision-Making Models19
    20. 20. Patient Capacity Building • Pre-Learning Session Three  Becoming a Quality Advocate • Agitation, Activism, and Advocacy • Historical Models of Civic Involvement  Foundations of Performance Measurement • Quality Indicators • Percent, Rate, and Measurement • Reading Data Reports  Experiential and Technical Aspects of Care • TED Talk – Dr. Abraham Verghese’s “ A Doctor’s Touch”20
    21. 21. Patient Capacity Building • Learning Session Four and Action Period Four  Organizational Assessment • Review of Organizational Assessment Tool • Review of Patient Involvement Questions  Quality Management Plan • Components of a Quality Management Plan • Roles and Responsibilities • Work Plan Development • Learning Session Five  Patient Evaluation of Collaborative Achievements  Proposal, Formation, and Funding of Q-PAC21
    22. 22. Outcomes • Formation of Core Group of Patient Participants in Collaborative (Q-PAC)  Quality Management Plan  Quality Improvement Projects • Assessment of Patient Involvement at Clinical Level • Delivery of Patient Self-Management Capacity to Clinic Patients in the EMA • Framework for NQC Training of Consumers for Quality (TCQ) • New Model for Patient Involvement in Collaborative Learning Efforts22
    23. 23. Lessons Learned • Patient Role Models and Leadership • Opportunities for Enhanced Learning  Storyboards as Patient Capacity Tools  Pre-Learning Sessions  Patient Delivered Presentations • Make or Break Components  Consistent Patient Involvement • Don’t Miss Networking  Engagement with Senior Quality Leadership • Recognize Patient Achievements23
    24. 24. Playing with Data24
    25. 25. Types of Data • Quantitative Data – counting things  Objective Measurement  Example: There are 574 patients in my clinic • Qualitative Data – describing things  Subjective Measurement  Example: My patients seem to be very engaged in their care25
    26. 26. TCQ Game: Bag of Data 1. Select a Recorder and Facilitator 2. Open and examine the contents of your “Bag of Data” 3. Record 3 qualitative and 3 quantitative observations about the contents26
    27. 27. Rationale, Purpose, and Outcomes • Patients tend to ask more qualitative questions related to aspect of care • Patients might view all quantitative data as “making us numbers” • Communicating and explaining “subjective” and “objective” helps in the understanding and application of concepts • Understanding the role of data in quality can lead to “common ground” between patient and provider QI goals and project aims27
    28. 28. Patient Centered Data Reporting28
    29. 29. Presenting Data to Patients 1. Determine if there is particular data your patients NEED to have 2. Ask your patients what data they are interested in viewing a. Sub-Population or Demographic Based Disparities b. Outcomes of Quality Improvement Projects c. Concerning Clinical Trends or Findings 3. Review your data and ask yourself, “What is the story that this data are telling?” 4. Consider how you would visually represent this story instead of simply handing out a table or chart29
    30. 30. 1. Interestingness a. Relevant, Meaningful, New 2. Integrity a. Truth, Consistency, Honesty, Accuracy 3. Form a. Beauty, Structure, Appearance 4. Function a. Easiness, Usefulness, Usability, Fit McCandless, David. http://www.informationisbeautiful.net/2009/interesting-easy-beautiful-true/30
    31. 31. Telling Your Story 25% of patients in the 60% of patients reported clinic received annual stigma as a significant barrier to syphilis screenings adhering to their medical visits31
    32. 32. National HIV/AIDS Strategy32
    33. 33. DC Patient Involvement Champions33
    34. 34. Collaborative Team Members Moderator: • Adam Thompson Panelists • Jane Caruso  DC Collaborative Faculty - NQC Consultant • Martha Cameron  DC Response Team Member - Q-PAC Team Leader • Amelia Khalil  DC Response Team Member – Capacity Sub-Committee • Dan Tietz  Manager of Consumer Affairs – NYS DOH34
    35. 35. THANK YOU• The National Quality Center• Health Resources and Services Administration• DC Department of Health (HAHSTA)• Northern Virginia Regional Commission• Greater Baden Medical Services• Family and Medical Counseling Service, Inc. Without these partners this would not have been possible.35
    36. 36. Contact Information • Adam Thompson  AdamTThompson@gmail.com • Amelia Khalil  ameliakhalil@gmail.com • Dan Tietz  det01@health.state.ny.us • Martha Sichone-Cameron  marthasichone@hotmail.com • National Quality Center  www.nationalqualitycenter.org36

    ×