AUCD’S A DECADE’S WORTH OF DISABILIT Y POLICYADVOCACY AND LEADERSHIP FELLOWSHIP
THANK YOU A special thank you to the Dr. Susan Vig and the wonderful Rose F. Kennedy Center staf f for allowing me to come back and present to you today. Thank you to all those who madethese experiences possible, especially Dr. Bob Marion and Ms. Sheryl Dicker, and all my directors and colleagues at AUCD.
WASHINGTON, DCOur nation’s capitol, and the center of advocacy and change . When inDC, one is surrounded by diagonal streets (The French architect -L’Enfant’s famously unique design ) with their state’s name printedproudly across the signage, incredible and breathtaking architecture:both wide and tall, ornate and simplistic, somber andcelebrator y, famous politicians (including the most famous of themall) and Supreme Cour t justices, food for miles and miles where onehas the choice of dining with Congressional staf f or casualfriends, the infamous Cherr y Blossoms that bloom as early as lateFebruar y (!), lady freedom and all her beauty, Smithsonian museumsat ever y corner, a mall with more nature than shops, the famous stepswhere MLK spoke his most inspiring words, memorials ofpresidents, heroes, and wars past, towering monuments withtremendous views of the Potomac and all DC’s glor y, power fulspeeches etched in stone, and a simply beautiful White House. It’struly where histor y, both one’s own and the nation’s, is made.
100 YEAR ANNIVERSARY OFJAPANESE CHERRY BLOSSOMS!
AUCD: HISTORY AND MISSION 40 Year Celebration (2011)! History: President Kennedy – first disability advocacy champion in the political sphere. 22 days before President Kennedy was assassinated he signed into law an act creating the first university -based facilities for individuals with DD, in 1963. (See AUCD History Page). AUCD now represents: 67 UCEDDs, 43 LENDs, and 15 IDDRCs. RFK Center is one of the few with all three Mission: “To advance policy and practice for and with people with developmental and other disabilities, their families, and their communities by supporting our members in research, education, and service activities that achieve our vision.”
AUCD’S 40 YEAR ANNIVERSARY “THE JOURNEY CONTINUES”
WHO’S WHO AT AUCD Executive Director of AUCD: George Jesien, PhD AUCD on Twitter: AUCDgeojes President of AUCD: Tony Antosh, EdD (RI UCEDD Director) Policy -Legislative Affairs Team (In Brief, Advocacy) Director: Kim Musheno Policy Analyst: Ellen Jensby Technical Assistance Director: Dawn Rudolph Policy Analysts: Hillary Spears, Rachel Patterson Self-Advocate: Liz Weintraub Data Manager: Corina Miclea Rotsko RFK’s Very Own Dr. Robert Marion: aka one of the most famous authors in AUCD’s Library!
GOALS OF THE FELLOWSHIP Began in 2001: 11 Fellows Purpose: expand knowledge/expertise of AUCD network faculty, staff and/or senior trainees First-hand experience. Exposure to interrelationship among government, agencies, advocacy organizations, & institutions of higher learning Provides experiences in development of national policy and legislation related to individuals with disabilities, their families and those who work on their behalf Broaden knowledge of the AUCD membership, its work and issues Develop key relationships with other federal level organizations 2013 Fellow Application will be up in May. See AUCD Disability Policy Page
RESPONSIBILITIES OF FELLOWSHIP Assist Legislative Team in writing updates on disability legislation for In Brief Maintaining/updating AUCD’s Health Reform Hub Attend Consortium of Citizens with Disabilities Task Force Meetings CCD represents a range of issues: transportation, housing, Medicaid, Autism, employment, educa tion, etc.) Attend relevant forums/hearings/briefings Participate in meetings with Congressional Staff Provide policy updates and TA to UCEDDs/LENDs/IDDRCs Assist in planning for Disability Policy Seminar Draft Press Releases
PAST FELLOWS’ ACCOMPLISHMENTS Facilitated Planning of 2011 National Self - Advocacy Summits Organized the first “Celebrating 10 Years of Fellowship” Panel at 2011 AUCD Conference (Amie Lulinski-Norris @ IL UCEDD). AUCD Liaison to COCA Participated in Higher Education Opp. Act Workgroup Provided Oral Testimony to Of fice of Postsecondary Ed. Advocated for critical legislation Rosa’s Law (Prevent Use of the “R” Word) Lifespan Respite Act New Freedom Initiative & Other Medicaid Related policies Combating Autism Reauthorization Act of 2011 !
CRITICAL LEGISLATION Affordable Care Act Ticket to Work – Work Incentives Planning Assistance ADA Accessibility Regulations: Pool Compliance Transportation: New Freedom Programs Olmstead Special Litigation ( Tom Perez – Assistant AG of Civil Rights Division of DOJ) VA ADA Settlement Educational Opportunities Section Housing Education Restraint and Seclusion Hearing in May NCLB Waivers: 37 States Applied
MY EXPERIENCES Meeting with Senator Tom Harkin to Present him with Gold Star Award from AUCD’s 2011 40 -year Anniversary Conference* NCIL 30 year anniversary congressional reception Congressional Briefing on Accessible Transportation Meetings with Congressional Staf f re: appropriations Congressional Briefing on “Caring for Kids with Autism Act” Attending Education Budget Briefing with Secretary of Education: Arne Duncan Supreme Court Hearings
PRESENTING SENATOR HARKIN WITH AUCD 2011 GOLD STAR AWARD AUCD Article Photo courtesy of AUCD
SENATOR TOM HARKIN Senator from Iowa, serving in Senate since 1985. House from 1975-1985. Chairman of the Senate Health, Education, Labor, and Pensions (HELP) Committee Early frontrunner for democratic party in 1992 presidential election, but dropped out in support of Bill Clinton. Most famous for disability advocacy. Introduced the ADA into the Senate Sibling of a brother with a disability Strong Stance against Medicaid Bias Champion for individuals with disabilities: Community First Choice Option: New York Restraint and Seclusion: will make floor statement Accessible Technology Back to Work Strategies See http://harkin.senate.gov/abouttom.cfm, http://www .help.senate.gov/about/chair/
MY PROJECTS Community Integration -Capacity Building: ADD Keeping the Promise Report Released by NDRN NY Group Home Exposed in series of NY Times Articles UCEDD Minority Partnership Projects Dual Eligibles Issue Brief: 15 States issued grants from CMS Create person-centered models for integrating care for Medicaid - Medicare enrollees. Many states have focused particularly on people with disabilities in their model plans. WIPA/PABSS Reauthorization: Funding running out in June/Sept. Grants to non-profit organizations and P&As to issue financial planning, benefits planning to ensure self-sufficiency of IWD in the workforce. Social Security Administration urges Congress to pass 5 -year Reauthorization Meetings with Congressional Staf f on UCEDD Funding Dr. Marion and Ms. Sheryl Dicker Lead the Meetings!
DISABILIT Y POLICY SEMINAR This Year: April 23-25 th 2012 Goals/Purpose: “The Seminar offers [advocates] the opportunity to come together, become educated on the issues, and take the initiative to speak with  elected officials about what is important to [them].” Highlights: Capitol Hill Reception (sponsored by Senator Tom Harkin). Awardees: Senator Tom Harkin, Tom Perez (DOJ: Assistant Attorney General for Civil Rights Division) Sibling Leadership Breakfast Self-Advocate Breakfast Trainee Reception: Michael Gamel-McCormick (HELP Committee Staff and former president of AUCD and director of DE UCEDD) will speak to trainees from all over the country Website: http://www.thearc.org/page.aspx?pid=2173
RESOURCES Lives Worth Living DVD Kristina’s Blog AUCD’s Action Center Health Reform Hub Fellowship Page WWW.AUCD.ORG Everything you need to know aboutAUCD should be available on the website, and if you have any particular questions please feel free to contact me.
CONTACT INFORMATION Kristina Majewski, J.D. 2012 Disability Policy Leadership Fellowship Association of University Centers on Disabilities firstname.lastname@example.org (973) 919-3567 (301) 588 – 8252 (ext. 205)Connect to AUCD on Facebook and Action Center. Keep up to date on recent disability legislation through AUCD’s weekly edition of In Brief
“LET’S GET TO WORK” - S E N AT O R T O M H A R K I N