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Step 2: Registering Potential Donors

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Narrated walk-through of the registration process.

Narrated walk-through of the registration process.

Published in: Health & Medicine, Technology

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Transcript

  • 1. 1000 Cranes for HOPE
    • National APAMSA Bone Marrow Campaign
  • 2. Just the facts
    • NMDP registry: 7 million total
            • Caucasian: 73%
            • Hispanic/Latino: 10%
            • African American: 8%
            • Asian/API: 7%
            • Multi Race: 3%
            • American Indian: 1%
    • 75% of Asian/API patients who need a bone marrow transplant do NOT get a lifesaving transplant
  • 3.
    • Thank you APAMSA members for your effort! ! !
    • Together we can recruit and expand the National Bone Marrow Registry to help patients find a life saving bone marrow match.
  • 4. Registrant Eligibility
    • Between age of 18-60
    • Be in overall good health and meet medical guidelines (see packet)
    • Live in the United States.
    • Have they already joined?
  • 5. Committed potential donor
    • We are responsible for making sure that the potential donor is fully committed at registration .
    • Registrants who match and later refuse to donate do MORE HARM than good for the patients and their families.
  • 6. INFORM the potential donor
    • The potential donor must understand the entire process. They must be aware of:
    • What it means to register
    • How long they will be listed in the registry
    • Understanding what will happen if they match
    • Knowing the 2 ways to donate
    • Knowing their obligations at the time of match
  • 7. Donor is unsure?
    • Try to address any and all of the donor’s questions or issues with the process.
    • Refer them to www.marrow.org or call 1 (800) MARROW2 for available materials in Chinese, Korean, Tagalog, Spanish, and Vietnamese .
    • Remind the potential donor that they have many opportunities to join the registry when they feel ready .
    • AGAIN, it is important that we register committed donors!
  • 8. Begin Registration Process
    • Have the potential donor read the INSERT in the consent form.
    • Have a representative be present to answer any questions they may have.
  • 9.
    • Make sure to place a large white BARCODE on the top right corner of the page.
    • The same barcode number will be used for the entire packet.
  • 10.
    • Fill out all information on this page.
    • If the registrant does not want to give his/her social security number, ask for a driver’s license number and 2 completely different contacts NOT at the same permanent address as the registrant.
    • Affix a large white BARCODE on this page.
  • 11.
    • Employer and spouse information is optional.
    • 1 st and 2 nd contact must all have DIFFERENT addresses than the registrants and from each other. They cannot be living at the same place. This is very important!
  • 12.
    • Make sure the registrant answers “ YES ” to Q1 and Q2.
    • Check the “ NO ” to Q3-Q9 regarding their health. Refer to the NMDP medical guide or onsite coordinator if the registrant answers “ YES ” to any problems with their health.
  • 13.
    • Have the registrant read the consent form.
  • 14.
    • Have the registrant SIGN this form.
  • 15. IMPORTANT!!! Double check the following before moving on:
    • Name
    • Birth Date
    • Address/phone number
    • Driver’s License or Social Security
    • Address & phone number
    • 2 contacts with different addresses
    • Full understanding of the health questionaire
    • Signature
  • 16. Donor ID card: Give card to the registrant
    • Affix a small white BARCODE on the card. GIVE CARD to the registrant.
    • Make sure that the donor knows to update their information when they move. Update at: www.BeTheMatch.org/update or at 1(800) Marrow2
    • Donor ID Card is a handy reminder of their commitment to helping someone in need.
  • 17. Buccal Cheek Swabs
    • TOTAL: 4 cotton tipped swabs
    • Put the PINK labels on each swab
    • Tell the registrant to:
      • use 1 swab to brush one corner of their cheek for 10 seconds
      • Put the used swab into the foam slits in the buccal card
      • Repeat with each individual swab at a different corner of the mouth
    • It is IMPORTANT that the swabs are not CONTAMINATED by someone touching the tip. Swab should only touch the registrant’s cheek.
  • 18.  
  • 19.
    • Affix a small white BARCODE onto the envelop and seal the envelop
  • 20. Leftover labels
    • 2 large white barcodes (registration form)
    • 2 small white barcodes (Donor ID card, envelop)
    • 4 pink barcodes (buccal swabs)
    Original labels
  • 21. Checklist
    • Put everything together inside the form to return to the NMDP office:
    • Completed forms with barcodes
    • Buccal swab envelop with barcode
    • Unused barcode labels
  • 22. Reminders
    • REGISTER your drive for the APAMSA “1000 Cranes for HOPE” national campaign via email at [email_address] with the following info:
      • Date, time, location, contact person, organization (A3M, Cammy Lee, Be the Match)
    • APAMSA will also be holding an online bone marrow drive beginning MARCH 1 st – MAY 30 th with registration fee waved if you use the code “ SWAB4APAMSA ” at http://join.marrow.org/SWAB4APAMSA . 

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